Tuesday, April 26

I Am Back and We Are Okay

Hi.
Remember me?
Well, I remember you - your support and camaraderie - and I'm so glad to talk to you.
I missed you.
Yes, YOU. If you're reading this, if you know how insular the world of having a narcoleptic in your life can be, then I am talking to you.
It's so nice to be in a space to be able to blog again.
It's been two years since I updated this blog.
Two long years.
First things first: we are fine. We are still married, our child is great, and things are okay.
Of course, I have so much to tell you...
...and I will.
I promise.


Monday, March 17

Motivational Monday


Monday, March 10

Motivational Monday


This blog is no longer active.

Friday, February 28

Thank you, thank you.

I want to thank everyone who has visited, is currently visiting, and will visit this blog.

Living with and loving someone who has narcolepsy presents unique challenges that most people simply can't understand. I created this blog to vent and will never delete this blog because I want people to know that they are not alone.
You are not alone.
There is nothing wrong with you; it's completely normal to feel the frustration and anger, agony and resentment that living with a narcoleptic causes!
But there are good things too. Don't forget to emphasize the good and dwell on the happy moments when they come.

I am so impressed with the emails I've received.
I am so touched by the comments you've left here and the encouragement you've offered.

But this is my last post here.

I genuinely loved working on this blog and believe that it went a long way toward helping me appreciate and comprehend the full scope of narcolepsy, cataplexy, and how if affects so much of a person's life. Unfortunately, there were other factors negatively affecting my marriage that I was unaware of until recently. So in order to focus on that, I'll have to let this blog go. I do have a few future posts scheduled and I won't cancel those, but please understand that as of this post, this blog is no longer active.

Again, thank you so much for reading. I'm just a regular wife and mom who did my best to understand and cope with my husband's chronic illness.

Hang in there and fight the good fight!
XO
Rain


Monday, January 27

Motivational Monday

Sometimes, a little motivational quote goes a long way toward encouraging me and my husband. Every now and then I will share especially good ones with you. Today's quote reminds me that I can be happy no matter what my circumstances because:
Happiness is a choice.


Monday, January 20

Treating Narcolepsy With Supplements

When my husband left his job, he also left his health insurance behind. Because our family's health care coverage was provided through my husband's employer, we joined the ranks of millions of American families who have a chronically ill family member and no health insurance. Without the health insurance providing prescription drug coverage, we were suddenly faced with a scary prospect - not being able to afford his medications.

Not too long ago, we asked for help paying for my hubby's Nuvigil, but were told that we didn't qualify for help. Yes, we were "poor" enough to qualify, but no, we couldn't have help while we had any type of insurance. Even if said insurance didn't cover the cost of the medication we needed. We were the typical family that falls between the not-enough-income, too-much-health-insurance cracks of the US health care system.

At least without any insurance, we now qualified to receive free medication from the company who manufactured it. Qualifying for the help and receiving the medication would take time, of course. In the interim, my husband's Nuvigil was quickly running out. He skipped taking it on days that he didn't have job interviews, but even so, we knew there would be at least a few weeks, maybe even months without medication for him to rely on.

What were we to do?

After doing extensive research, we decided to try several supplements. It took some juggling, but we eventually came up with a vitamin regimen that seemed to help. It didn't work as well as Nuvigil, but it helped, which is all we had hoped for. I will go into more detail (brand names, cost comparison, etc.) in
From wisegeek.com
another post, but this is basically what we tried:

  • a daily men's multivitamin
  • Calcium
  • Magnesium
  • Vitamin B-12
  • Vitamin A
  • Vitamin D
  • Inositol & Choline
  • 6 mile daily walk (broken up into two 3-mile walks)

The results? My husband said (and I quote), "This is the best I've ever felt without medication." He emphasized that consistent exercise and the supplements truly made all the difference. We now have a goal of getting him off of the medication altogether and back on the daily supplements/exercise to treat his narcolepsy.