Monday, May 2

When Narcolepsy Is Not the Only Issue

When you are married to someone who is chronically ill, the illness is rarely the only issue.

The illness and all required to cope with it are a major part, of course.
There are the obvious logistics: the battle to cope with tweaking medications, side effects from tweaking those medications, doctor's appointments, hospital visits, therapies, and the scheduling and travel involved with the whole process.

Then there are the less obvious social aspects: dealing with everyday life while battling constant fatigue, trying to focus at work or school, finding time - and energy - to maintain friendships, marriage, and a quality relationship with your children, all while dealing with the stigma and isolation living with a relatively unknown, incurable illness creates.

Don't forget the extras: there may be financial difficulties, emotional trauma, struggles with family, friends or even medical professionals who just don't understand. The list can be endless.

It's enough to drive even the most patient person to distraction, the strongest person to tears of frustration.

But what if that wasn't all?

What if there was something else lurking at the edges of your life, waiting to upset the precarious routine your family has finally settled into?

That's what happened to us.

Among other things, my husband had to face down yet another illness, I became very ill, we moved, our old-but-faithful car gave up, and worst of all, worst of all... my dear mother-in-law died suddenly, from what we believe were complications related to her (newly diagnosed) sleep apnea. And even more horrible - my husband found her body.

Suffice it to say, 2014 was the worst - and most enlightening - year of my life. Our lives sort of... imploded that year. We stumbled from one struggle to the next with little time to breathe, more less recover. For about eight months, things were... just a mess. But we survived. We endured. And now that the dust has settled, here we are. Whole, intact, and coping.

We are okay.

My mother-in-law is missed everyday, and all of the other issues have resolved themselves wonderfully, I'm grateful to say. But that's life, isn't it? How many cliches have you found yourself living through? "When it rains, it pours." "Well, that's Murphy's Law." "We're being kicked while we're down." It happens.

For those of you who reached out during my absence, thank you dearly. I hope that all of you are well and coping as best you can with the endless struggle of narcolepsy and cataplexy.

It's wonderful to be back. I have so much to tell you.

Tuesday, April 26

I Am Back and We Are Okay

Remember me?
Well, I remember you - your support and camaraderie - and I'm so glad to talk to you.
I missed you.
Yes, YOU. If you're reading this, if you know how insular the world of having a narcoleptic in your life can be, then I am talking to you.
It's so nice to be in a space to be able to blog again.
It's been two years since I updated this blog.
Two long years.
First things first: we are fine. We are still married, our child is great, and things are okay.
Of course, I have so much to tell you...
...and I will.
I promise.

Monday, March 17

Motivational Monday

Friday, February 28

Thank you, thank you.

I want to thank everyone who has visited, is currently visiting, and will visit this blog.

Living with and loving someone who has narcolepsy presents unique challenges that most people simply can't understand. I created this blog to vent and will never delete this blog because I want people to know that they are not alone.
You are not alone.
There is nothing wrong with you; it's completely normal to feel the frustration and anger, agony and resentment that living with a narcoleptic causes!
But there are good things too. Don't forget to emphasize the good and dwell on the happy moments when they come.

I am so impressed with the emails I've received.
I am so touched by the comments you've left here and the encouragement you've offered.

But this is my last post here.

I genuinely loved working on this blog and believe that it went a long way toward helping me appreciate and comprehend the full scope of narcolepsy, cataplexy, and how if affects so much of a person's life. Unfortunately, there were other factors negatively affecting my marriage that I was unaware of until recently. So in order to focus on that, I'll have to let this blog go. I do have a few future posts scheduled and I won't cancel those, but please understand that as of this post, this blog is no longer active.

Again, thank you so much for reading. I'm just a regular wife and mom who did my best to understand and cope with my husband's chronic illness.

Hang in there and fight the good fight!

Monday, January 27

Motivational Monday

Sometimes, a little motivational quote goes a long way toward encouraging me and my husband. Every now and then I will share especially good ones with you. Today's quote reminds me that I can be happy no matter what my circumstances because:
Happiness is a choice.