So I hopped online to find... something. And I did. I found lots of information that was quite beneficial and informative. Lots of clinical information, various research analyses, and even personal experiences. But the personal experiences were what appealed to me the most. Specifically, I longed for stories of other people who had spouses with Narcolepsy and Cataplexy. I wanted real life input on coping day to day.
I couldn't seem to find anything, so I decided to vent instead. That was my motivation. I wanted a place to spill my I'm-sick-of-Narcolepsy guts. When I wrote my first post, it was such a relief to say what I was feeling about Narcolepsy! In fact, this blog was private initially. But I wondered if there was anyone - just one - person who would take comfort in knowing that they weren't alone. So I made it a public blog instead. I was amazed - and touched - by the response. People from all over the world told me that they could relate. Emails and blog comments poured in faster than I could reply to them. I was truly grateful for the outpouring of support.
And then I stopped writing.
A little more than a year ago, my husband quit his job. As if that weren't stressful enough, I became very ill and extremely fatigued (turned out it was anemia). This blog was pushed to the back burner until my health improved. By the time I felt better, though, I wondered if anyone was even reading this blog anymore. Again, I was amazed to see all of the messages and comments you've left me! As I was reading some of them aloud to my husband, I choked up. There are so many of us who just don't know what to do. We have to encourage one another, laugh with one another, give virtual hugs and good advice...
My husband and I are still here, plugging away at staying happily married despite the trials of a disease that just doesn't go away. Thank you for motivating me to keep blogging.