I love my husband but I hate his illness. I'm trying to learn how to help my family thrive despite my husband's narcolepsy, and I hope this blog also helps anyone else living under the weight of this disease.
If you want I'll interview. My husband and I have been married for 7 years and he has narcolepsy. I feel like no one understands. When I say no one I mean no one. We have 3 kids. We are always late and seem to most people like we are unorganized. Which in my opinion is the biggest joke because I am one of the most organized people in the world. It's just great to see I am not alone. Thanks for letting me know I am not alone (neither are you).
Hi, I am also a mom of 3 children and my husband has been recently diagnosed with narcolepsy. He has been dealing with chronic fatigue for over 7 years. We have been married 15 years and together 21 years this year. I also feel like no one understands...and that I'm alone. Thank you for your post/blog because it does help to know others are dealing with the same issues. I love my husband, but I'm really struggling right now. He is basically going through the motions of daily life with no emotion. He rarely feels like talking, definitely doesn't feel like doing anything physically (including intimacy) and isn't able to meet the emotional needs either. I basically feel that I'm a single mom on all aspects. I want to stay strong and keep fighting for us, but I feel that I'm so young to not be able to live my life as well. It has been really hard. I pray that God will bring healing and that we can get through all of this and become stronger on the other side. God Bless!