tag:blogger.com,1999:blog-7569079413363472914.post3413317580450620492..comments2023-10-23T17:42:51.326-05:00Comments on The Narcoleptic's Wife: The Isolation of NarcolepsyThe Narcoleptic's Wifehttp://www.blogger.com/profile/07538293091126697260noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-7569079413363472914.post-71444427200985765342015-05-18T15:30:07.094-05:002015-05-18T15:30:07.094-05:00My partner just found your blog and it definitely ...My partner just found your blog and it definitely mirrors her sentiments. We try to keep a sense of humor about it as much as possible but there are definitely times she is frustrated as you sound. I'm sure a lot of people benefit from knowing their experience is not unique. I hope its therapeutic for you as well. <br />Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7569079413363472914.post-5879948259049000362013-10-03T16:18:15.787-05:002013-10-03T16:18:15.787-05:00<3 I've only just found your blog while doi...<3 I've only just found your blog while doing a bit of narc research. As the wife of someone with severe Narcolepsy n cataplexy. I understand every single bit of that frustration.<br /><br />It's hard work sometimes. Not always. But there are times, as a narcoleptics wife, that I just feel like "ARGHHHHHH your needs are forefront in my mind all the time, can't you see how it's not only your life that has been affected but mine too"<br /><br />I feel so guilty putting that into actual written words. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7569079413363472914.post-12209428899547910042013-08-07T18:19:39.876-05:002013-08-07T18:19:39.876-05:00Sometimes I feel so sorry for myself living with a...Sometimes I feel so sorry for myself living with an invisible illness. It's so hard to have your illness blamed on perceived character flaws- late for work because you're irresponsible, falling asleep because you're bored/ boring/ don't know when to go to bed, and dozens of other things. I also feel so sorry for my husband- constantly watching movies alone while he tries to fill me in between naps, and facing a lot of the same alone moments I know you understand all too well. <br />I still remember going to bed the night I first had been taking provigil. About 5 minutes after we went to bed, I noticed my husband looked elated. He was so happy that we could just lay in bed and talk! It had been so long he said he forgot what that was like. <br /><br />Daniellehttps://www.blogger.com/profile/03110553726128699587noreply@blogger.comtag:blogger.com,1999:blog-7569079413363472914.post-31262842264283778522013-05-16T07:55:53.484-05:002013-05-16T07:55:53.484-05:00Hi! I am grateful that you have designed this webs...Hi! I am grateful that you have designed this website and are willing to share personal information. I think I am drawing near to the end... I am not sure how much longer I can live with my narcoleptic husband. I have been through hallucinations, mood swings, messes and disapointments. We just had our anniversary and he meandered around the house working on his projects and complaining of not being able to wake up. At around 9 pm he came in my room hoping we could have "special time", but I was ready to go to bed --- he then got upset. I am tired of living by his schedule and putting up with his mood swings! Is this the norm?<br /><br />- A FriendAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7569079413363472914.post-81287280232775659762013-05-05T00:03:23.657-05:002013-05-05T00:03:23.657-05:00My husband is waiting on a diagnosis but his docto...My husband is waiting on a diagnosis but his doctor suspects narcolepsy. We are a young couple and have two small children. It is very lonely and frustrating, I can't imagine a whole lifetime like this.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7569079413363472914.post-18724452799666717522012-12-10T18:32:35.831-06:002012-12-10T18:32:35.831-06:00My husband has mild narcolepsy that is not nearly ...My husband has mild narcolepsy that is not nearly as severe as your husband's. He doesn't usually fall asleep unless he is relaxed, but he is capable of falling asleep at just about any time and goes into REM sleep half awake. I give you props for dealing so compassionately with your husband. I know that, even now that I know what is wrong, I sometimes get my feelings hurt when we are cuddled up and he suddenly falls asleep. I need to understand and be more selfless, but sometimes it's easier to just wish things were different.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7569079413363472914.post-82966598601493007412012-11-29T21:43:20.619-06:002012-11-29T21:43:20.619-06:00Hi,
What do you think about using Modalert to st...Hi, <br /><br />What do you think about using <a href="http://www.getrxprice.com/compare/buy-modalert.html" rel="nofollow">Modalert to stay awake?</a> ? <br /><br />ThanksNorman Detthttps://www.blogger.com/profile/12176999878143532821noreply@blogger.com